WEDNESDAY

Faith had a rough night. They took her off the Oscillator and put her on a regular vent. She did well at first, but then things started crashing so she is back on the Oscillator. She just wasn't ready.

The other part of the night was that the Vascular surgeon came in and Faith will be losing her feet. We cannot risk infection. Because of the poor circulation and damage, they will more than likely be amputating at about mid-shin down. It sounds awful but it may actually help because then her body doesn't have to try to heal her lower extremeties.

The good news is that Faith was completely opening her eyes this morning!!! She was trying to smile and trying to talk. She was raising her right hand for yes and squeezing our hand for no. It was very exciting!

Right now, she is sedated and has pain medication in her which they did before they messed with her feet. It has got to be very painful and they didn't want to do that to her. She will more than likely be sleeping for quite a few hours, but I am praying she will be opening her eyes again when she wakes up. It was wonderful!

I slept last night and Monty is sleeping right now. I know we have to start thinking about how we are going to manage this long term, but we haven't even had a chance! Dr. Raff said that if things continued going in this direction, that we should expect to be here until at least the end of May. This will be very challenging since we have so many children and extracurricular activities to manage. It is going to take some serious planning and organization. But, how do you complain when it could mean that we would be bringing Faith home?

Thanks to all for all the kind and encouraging words.