Sunday, April 26, 2009

DAY 26

Faith is having a good day (per report from Monty). Monty said she watched an entire episode of Max and Ruby! She was also a good patient...squeezing the hand of her nurse when asked to do so and opening or closing her eyes when asked. That is my good girl!!

They will be starting feeds today. An extremely small amount to start with at only 2 ml per hour. But, better to be safe as starting feeds can draw blood into the GI tract. That is where most of our troubles have surfaced so I am nervous even at only 2ml per hour!

They are also trying to wean down on vent settings. We can't seem to get down on the Nitric Oxide, but that can be given via nasal canula...so lets get off the vent so I can hear my baby's voice!

On the downside, Faith's liver function is failing a bit more. The doctors are not too concerned as they feel it was from the blood that surrounded the liver and the abdominal pressure she has had because of the bleed. She is quite yellow, however, so I hope they are correct.

Still no CT results. I guess that is a good thing?????

8 comments:

  1. Michelle MadduxSunday, 26 April, 2009

    So glad to hear that she watched Max & Ruby, that is my son Nathan's favorite cartoon!!!! Sweet-girl cooperating with the nurses and everything, what a trooper! Smiles to you!

    ReplyDelete
  2. So happy to hear that Faith is responding to her nurses!! That's our Faith!
    Thanks again for keeping us posted on Faith.
    Love,
    Teacher Barbara

    ReplyDelete
  3. Hugs to all of you and keep up the good work Faith!

    Lynne B

    ReplyDelete
  4. We don't even know who Max And Ruby are!! We are sure going to ask Pete. We are so happy for the good news!! Keep the Faith!! Things are looking up. Barbara and Nick from NH.

    ReplyDelete
  5. You continue to be in our thoughts and prayers. Go Faith! - the Heckelmans

    ReplyDelete
  6. You're doing great, Faith! Keep it up so you can go home!

    Love,
    Lisa Froling

    ReplyDelete
  7. Glad to hear that Faith had a pretty good day. I am praying the liver function improves and that you get the CT results soon. As always, let me know if I can do anything.
    Heart Hugs!

    ReplyDelete
  8. Hi everyone, thanks for the news on Faith. That GI tract has always been a problem. Hopefully they can find the culprit to all of this.I thought when they did surgery they'd find something! She's had so many problems with her tummy. I'm happy to hear she's watching tv. She loves her shows. LOL, Nurse Linda. Love you shelly.

    ReplyDelete