DAY 30

This is insane....Faith looks really good today. All of her vitals are great, her color looks better, they were able to take off Epinephrine (that had been started again), and her eyes are open and she will squeeze your hand or close her eyes when asked. All I can say, is there is NO WAY they can talk me into pulling plugs. Everytime they give up on her, she shows us that they shouldn't. She is so strong and has such a will to survive. There is no doubt in my mind that she should be given the chance to continue her journey. She is not done. I am not done.

With that being said, here is where we are at:

The team of her physicians will be meeting at 3pm to discuss what they feel is the best plan for her. They want to all be on the same page with that.

We are supposed to go in with them at 4:00pm.

Dr. Haight, the GI specialist, does feel there is a blockage between her liver and her intestines based on her CT scan. The simplest procedure is the one I discussed yesterday, however the doctor that performs the procedure only comes the first 3 Wednesdays of the month. So, we would have to wait until Wednesday. He comes from UCSF and can bring the equipment. Otherwise, the only other hospitals that have the equipment available are UCSF or Stanford. I asked about a transfer and they were not sure she is stable enough. (But that was yesterday).

They may have to fix it surgically which is high risk, of course. However, her main problem right now is her liver. She is not a candidate for a transplant and there is no cure for a failed liver other than transplant. So, if we can try to get her liver functioning better by removing the blockage....I feel it is worth the risk. Your liver is what clots your blood, so by getting her liver functioning better, we could possibly stop these bleeds as well.

So, I am open to a transfer and/or surgery. Obviously, Faith continues to show her will to survive. I think we should give her that chance...even if these things come with high risk. I can't pull plugs. I just can't. I would much rather lose her trying to keep her than just giving up.

That is where we are at today in this insane journey of "keeping Faith". I will check back in after the meeting and let you all know what the plan will be.

Keep praying. Keep Faith.