DAY 13

Faith did very well with her surgery. They didn't find anything significant, but I think it was a blessing in disguise. The wound vac they put over the site is helping things improve. Fluid is not draining all over her skin and entry sites. The nurses can actually sit down for awhile and chart instead of having to change soaked pads every 15-30 minutes!

They have been able to lower her vent settings and go down on more of her medications. Faith has been alert a lot more and trying to communicate. Dr. Raff suggested getting child life to make communication cards to help her out. He is such a great guy...going beyond his specialty which is the heart...to the entire well-being of his patient. We are blessed to have him!

They do not think infection is in the lungs and there has not been growth in her bloodwork regarding the sepsis. It scares me to even say anything like that, though, because I am afraid to jinx it. Bottom line, is that we are making great progress but still have to remember that she continues to remain in critical condition at this point in time. We can just pray that we continue on this path without any major setbacks.

Monty will be going home later today to start our shifting of 2 days on, 2 days off. Time to be there for the other kids, as well, and I know they will be so happy to see their daddy today. I am here at Ronald McDonald getting some laundry done before he leaves and then will be heading over to see my beautiful, strong, inspirational little girl.

I want everyone to enjoy their families on this Easter Day. Please try to concentrate on being fully engaged with the ones you love. HAPPY EASTER!