Neurology was called in today and they did a series of test and feel that Faith is brain dead and it just didn't show up on the CT. Supposedly sometimes brain injury doesn't show up on a CT for a few days. Monty and I had to go to a private room with a team of doctors and be told there is little to no hope. It was horrifying. I couldn't even look at them.
Luckily, Dr. Choy has not given up yet and still carries some hope along with us. We are also fortunate to have our favorite ICU doctor here tonight that has been the most positive out of everyone about her hope of recovery. They have asked for the tests to be repeated tomorrow. They will repeat the tests tomorrow at 11am and then will be bringing us back in to that stupid room to talk again.
Meanwhile, we are stuck here feeling sick and wondering how to get through the night. We know we have to be somewhat realistic, yet this is our little girl. It is so hard to know what is the right thing to do. The chaplin was called in...again...and said more prayers. We are saying prayers and are hoping tomorrow will bring more clarity.
Please, please, please pray extra hard for her tonight and tomorrow morning. She is just too special to lose.
I am so sorry to hear of this latest update for Faith. I know you are all sick. I will continue to pray that God will do what is best for little Faith.
ReplyDeletePraying hard for an earthly miracle.
Pam and Madison
www.caringbridge.org/visit/madison
I am another heart mom who has been following your story. My heart is breaking for you. I hope that tomorrow brings you some answers and that you can try and get the rest you need tonight.
ReplyDeleteMy thoughts are with you
Dina Sommers
I continue to pray for Faith and your family. I pray for a miracle. I pray for the answers we all want to hear tomorrow. I hope you are able to get some rest tonight and be strong in the morning. Heart hugs from another heart mom. Karen and family
ReplyDeleteI am so sorry to hear this news. I feel sick to my stomach. I am praying for Faith and will ask everyone I know to join with us.
ReplyDeleteI will be praying for you and Faith. I wish there were more that I could say or do to change your news. I hope for you to find all the strength you can muster in this trying time.
ReplyDelete-Laura Jaeggi
We are praying for Faith.
ReplyDeleteMy heart aches for you and the pain you must feel. We are praying for clarity and answers for you tomorrow.
We have never met Faith, but we love her all the same.
-The Stone Family
(Artie, Michelle, Zowie and Madison(TOF and Digeorge syndrome)
I am in tears reading this.. but I am going to hang on to hope along with you and I have prayed extra hard..I want little Faith to pull through too...
ReplyDeleteLynne Booker
Oh Shelly, I am crying tears for you and your little girl. I am hopeful that the retests will be positive. I am so full of sadness for what you and your family are enduring. I know it is hard, but try to keep that chin up! Miracles happen all the time....Faith being a part of your life and family is a miracle within itself. My thoughts will stay with you and yours.
ReplyDeleteShelly, I have been reading everyday and praying for a miracle for Faith. I believe miracles can happen, and I will pray for one tonight for Faith and your family.
ReplyDeleteGretchen Harshman
Dear Shelley,
ReplyDeleteI'm praying for our little Faith. I'm on a road trip and this is the first chance since Sat. morning that I have been able to catch up on her progress.
God Bless your whole family.
Love,
Teacher Barbara Montague
I truly have no words, as your last post has left me speechless. I pray that you have more answers tomorrow...the ones we want to hear! I commend you on being strong enough to keep us updated. I have faith in Faith, and so does her cardiologist!
ReplyDeleteGina
www.dykefamilytalk.blogspot.com
Shelly and Monty,
ReplyDeleteYou both are doing an amazing job of hanging in there for Faith. Hold on to what you know best about your little girl...she is never that easy to diagnose. You know she is in there so don't let this change your positive outlook on what is in store for her. We will be next door at Shriner's tomorrow and plan to stop your way. I know we can't see Faith but we would still like to see you. I will pray hard for her and for you to get better news tomorrow. Stay strong, that is what has gotten her this far! You both are my heroes!
Love you a ton!!!!
I just wanted you to know that people you don't even know are praying for Faith and all of you tonight!! What a beautiful girl!!
ReplyDeletePraying Praying Praying
Kristina Edwards
We're praying for a better answer tomorrow. I'm sorry....I'm out of words.....just know that you're not alone.
ReplyDeleteDesiree Burrier
I'm thinking of you guys and praying also. I just wanted you to know that. Love, The LaHaie's. (Sammy is praying very hard too!)
ReplyDeleteI really do not know what to say. We love you and will keep praying for you. We are all here for you.
ReplyDeleteFaith's Mommy,
ReplyDeleteI pray that your baby girl be wrapped in Jesus's robes and hugged close to his heart, be filled with His love and make it through this difficult time as is His will. I pray that you feel the peace of knowing Him through your daughter Faith, and that your heart beat in peace. I know Faith feels her momma's love and pray that right now, our heavenly Father give her comfort. I pray for your family and your Faithy.
Always,
Robin Parra of the yahoo heart group
I am so sorry for the news. I have asked all my prayer warriors to cover you and your family in prayer. We will be praying for better news in the next post. God bless Heather (Mom to Kendall 15 yrs old HRHS)
ReplyDeleteShelly, Monty,and Family,
ReplyDeleteMy heart and prayers are with you and Faith. Thank you for your courage and love....
mary curtis
I am so sorry to hear the news of Faith. We continue to pray for strength for you and your family. Our heart and prayers are with you.
ReplyDeletestay strong,
Renee and Peter
Shelly I am beyond words right now. So I will get on my knees as soon as I am done writing this and pray for your little girl and your family. For strength, for healing, for peace, from one heart mom to another.
ReplyDeleteRachel
Faith is my prayers. May God shine his mercy on her!
ReplyDeleteMonique Carpenter, CHD Families
We will be praying for Faith and for your entire family. May God be with you all and may you feel his presence. God Bless you - the Heckelmans
ReplyDeleteStill praying this morning and waiting anxiously with you.
ReplyDeleteI continue to pray today too and have been checking often hoping to hear positive news..Lynne B.
ReplyDeleteI wanted to let you know that I have been praying for Faith and the rest of your family! (a friend of Andrea's)
ReplyDeleteWe are here for you! Still hoping for a miracle. Faith is so lucky to have such a wonderful mother. You all have been in my thoughts all day.
ReplyDeleteDear Family,
ReplyDeleteWe are sending our prayers your way and asking Faith's guardian angel to see her through this. Back in December we waited 6 days to get an MRI to determine if our son had brain damage after a ruptured aorta during surgery. After 9 minutes w/o blood pressure and a tremendous loss of blood all thought the worst. Through the grace of God nothing showed up on his MRI and he was able to undergo and 2nd Glenn surgery 7 days after his first and is doing great now. Place her in God's hands and know we are all thinking and praying for you,there are miracles.