Tuesday, April 7, 2009

APPRECIATION

I appreciate everyone's positive thoughts and prayers because guess what.....they are working!!!! In my darkest hour, a miracle was shown. At about 11:45pm, Faith's nurse checked her pupils and there was no response. Prior to that, Faith had done a bit of what looked like twitching. I asked how that was possible with no brain function and she said that she did not know.

About a half hour later, I was talking to to Faith and told her she was my pretty princess and she SMILED! From that point on, Faith has continued to smile on occasion and is moving her feet and her hands. Auntie Glenda and daddy, along with nurses and doctors got to witness these miracles. Faith is also opening her mouth on her own to be suctioned! After an hour or so of some responsiveness, they were able to take her completely off the epinepherin, her blood pressure went up and they were able to lower the levels on her pacemaker because she was overriding it!!

It was truley a miracle and the entire hospital staff had tears in their eyes and renewed hope on so many levels. Like I said, I appreciate everyone's prayers soooo much because they HAVE to be working!!!! I will never again question a higher power and this was life changing.

Of course, there are still many concerns so we still met at 11:00 to discuss where we go from this point. Obviously she is not going to be declared braindead and we will continue to proceed. There are serious concerns about her liver, kidneys and feet. They did an ultrsound on her liver today, but I haven't found out the results. Her kidneys are being supported by dialysis and she may not be able to go off dialysis. That is concerning because we don't have access on her upper body due to her cardiac anatomy. Her feet, like I have said before, are awful and they are worried about gangrene setting in. They are consulting with a Vascular surgeon and ortho to discuss a plan. More than likely, we will lose some part of the feet. She is septic , has internal yeast and possible other infections that are being cultured and that is the reason for isolation.

But, at least FINALLY some good news. So sorry everyone is being dragged along on this crazy ride, but thank you for sticking with us and continuing to give us strength. Lets keep our fingers crossed this is the turn we needed to continue on a stable path. I'm not sure how much more OUR hearts can take!

20 comments:

  1. Thank God! I am now reading this with tears of joy..and am so glad that things are starting to turn around!

    Lynne B

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  2. I am thrilled beyond words for all of you, especially little Faith!!

    KEEP UP THE FIGHT!!

    Much love, support and more prayers!

    Lisa Froling

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  3. I was on my knees crying and praying over your daughter today after reading your previous post...this is truly a miracle. I know there is a rough road ahead and will continue to pray. Thank God for miracles! Faith is a fighter, there is no doubt!!

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  4. Praise God! Thanks for the update. We will continue to pray for Faith. There are so many people that are praying for Faith and your family....and by the way, we don't mind getting dragged along the crazy ride. Like I said earlier, you don't have to ride this alone. God has specials plans and HE is AT WORK. Take care and try to get some rest.

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  5. Shelly,

    Faith's update is truly a testament to the miracles that are all around us. God has listened to your prayers and carried you and your family in these last very bleak days. I will continue to pray for your family!

    -Laura Jaeggi

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  6. My daughter is a friend of Andrea Himmelberger and Meredith asked for prayers for your daughter. I prayed for all of you today before the Blessed Sacrmament in Richardson, TX

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  7. Aaron and familyTuesday, 07 April, 2009

    I love you Faithy! I'm smiling with you!
    From Aaron

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  8. So glad things are starting to turn around. Continuing to pray for Faith. She is such a strong fighter.

    -Suzanne DeMarco (HOH member)

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  9. Shelly,

    I am so relieved for you.....miracles are wonderful! I know the journey contines, but I am so happy at Faith's responses they are most encouraging!

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  10. I am smiling and my eyes are filled with tears of joy. Praise God! I am so glad to hear this news. I can only imagine how wonderful it was to see Faith smiling! We will continue our prayers!

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  11. I have been following your daughter's story for the last week or so after hearing about her through HOH. I have been praying and thinking of your baby girl constantly, and look nightly for an update, hoping for some good news to come your way. I had the BIGGEST smile on my face while reading tonight's update, Hooray Faith!! You can do it sweet girl!!!

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  12. Dear Shelley and Family,
    What a ride this is! That Faith! What a little miracle she is ! Keep it up, Faith! We love you! I'm praying for you and so is my family.
    Love,
    Teacher Barbara Montague

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  13. Praise God!!! I can't tell you how nervous I was to open your blog...and now I am crying with tears of joy! And to picture the UCDMC staff crying as well makes it even more amazing. I am so happy that Faith smiled, and gave YOU reason to smile. Keep up the great work Faith!!

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  14. I am Andrea Himmelberger's mom and I have been praying for Faith as hard and sincerely as I have prayed for my own grandson. I hope you feel the love and and I know God is listening to our prayers.

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  15. you don't know me but I have been following your story and am so thrilled for you. Faith has touched my heart! I am keeping your family in my prayers every day and night....you never know how strong you can be, until strength is your only choice...keep being strong Faith!!!!!

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  16. Hi Faithie this is Jessica Perry im praying for you and i know you can do it

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  17. I just found your blog as I was looking through local blogs. I am glad for this great news. I will keep Faith in my prayers. Continue to keep us all updated.

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  18. WOW!! Woooo Hooo! Praise GOD!! I am overjoyed at Faiths progress! Our Lord's love has no limits. Praise GOD!!!
    Hug and Kiss your little princess for all of us!

    Robin of the yahoo congenital group

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  19. Prayers are being answered from Sacramento, CA to Boston, MA. My family and I here in CA and my parents in Boston, MA continue to pray for Faith and your family. I agree with Desiree, we dont mind being dragged along with you, you don't have to ride this alone. The power of prayer is a wonderful thing.
    Get some rest and stay strong,
    Renee

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  20. I love you Faith, please get better...I need you, we need you!

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