DAY 59

We have had to switch to "comfort care" for Faith today as there is nothing left the doctors can do to save her. They will continue to use dialysis each day for comfort (so she doesn't fill up with fluid) and she will continue to be on pain medication and sedatives. If a bleed were to start and her blood pressure drops, they are refusing to give any more vasopressures since they damage the gutt so much. It is just a viscous cycle that we have been chasing these past two months that doesn't want to stop.

I came home tonight to talk to my other children about what is going on. They did pretty well and just want Faith to be free of pain. We are all happy we were her chosen family and talked about how lucky we were to have had her for 5 years. I also had to ask family and friends to watch them since Monty and I will be bedside until the end.

I really wanted to be able to bring Faith home with hospice, but I guess that may not be a realistic plan. It is unrealistic because of the possible bleeding issues that we would not want other children to see. All they need to remember is their cute little sister that loved her family to no end.

For those of you that were very close with Faith that would like to visit....I can't give a time frame of how long she will be here....so I would come as soon as you can. We are at UC Davis Hospital. 7th floor in the PICU. Buzz in to say you would like to see Faith Duarte. We are in bed 10 which is at the very end.

Thank you to everyone for all your encouragement, love and prayers.