Thursday, May 21, 2009

DAY 50 and 51

Faith successfully switched to the conventional vent!!!!!! Yahoo!!!!! She is doing so well that they are going to continue to lower settings on the vent today and see how it goes. I really think she can do it and we won't have to worry about a trach! Come on Faithy!!!

She is now off all her antibiotics except the antifungal that she may never be off of. They will keep a close watch on her temperature and white counts to be on top of any other infection should something start again. Hopefully it won't be an issue.

All of her vitals have been stable and she is getting close to being off her last blood pressure medication. They have almost weaned off Versed, as well, and are continuing with ativan and methadone for pain and anxiety. She does not seem to be in any pain, though, and when she is awake, has been able to listen to a story or two. Also, her brothers and sisters and friend, Drew, have made her pictures and they are right where she can look at them. Her favorite thing right now is for Monty and I to point each one out and talk about them and read what the kids wrote on them to her. She can focus on each one and then is worn out (there are 6 of them). Very cute!!!!

So it looks like Team: KEEP FAITH is starting to turn some corners. We are still being cautious and are still very nervous, but are more than happy with the way things look at this moment. Thank you everyone for your continuing support!!!!!!!!!!

14 comments:

  1. Faith is SO amazing! Glad to hear she is doing better, praying it continues! :)

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  2. I am a heart mom also, my 4yr old Jozlynn has HRHS(half a heart). I've been following Faith for quite a while. I hope she continues to get better. Our thoughts are with your family. Stay strong!

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  3. Oh my gosh, I have tears of joy! Great progress Faith! We will continue praying for slow and steady progress to be made. Sending love and hugs!

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  4. I am so happy for all of you!!! Hugs to all!

    Lynne B

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  5. It's so good to hear Faith is doing better and better every day, KEEP FAITH !!!!
    Sending prayers from Chicago!!!
    Agnes,

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  6. What a tough young lady!!! I am glad she's progressing and it was great to see you last night.
    Ken

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  7. She is a trooper for sure!

    I hope you're planning her big "WELCOME HOME FAITH!" party!!! That day will be here before you know it!

    Love ya!
    Lisa Froling

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  8. Thank GOD!!!!! Faith we all have, now we have Hope!!! This is a fantastic start to a Memorial Day Weekend.......... Prayers and more Prayers.. Barbara and Nick. NH.

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  9. We have been checking in on your blog daily. Know that your family is still part of us. Let us know if there is ever anything we can do for Faith and her family.
    LeeAnn & all of Head Start.

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  10. Yay Faith! All in Faith's timing :). God bless.

    Desiree Burrier

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  11. Go Faith! We knew you could do it, keep going sweet girl!

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  12. michelle madduxThursday, 21 May, 2009

    Yippeee!!! Just what we want to hear....Faith on her way to proving miracles happen! Happy tears!!!!!

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  13. So happy to hear that Faith is doing so great!!My prayers continue to be with all of you!
    Teacher Barbara

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  14. woohoo! so glad to hear, I am praying for continued success. Wow, what great news! Keep it coming Faith. Take care Shelly, thinking of you always, Tina

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