Sunday, May 17, 2009

DAY 47

I just watched Marley and Me....and I am bawling. That movie shows how I feel. When he says that Marley is not like other dogs when they are discussing surgery or not....that is Faith! You just can't go off statistics or what is "normal". And, like the movie, no one in this world has made me feel more special...just like Marley did for them...Faith does for us. I just can't imagine my world without her. My mind is swirling with images of all the other parents I have watched lose their children and I ache for them. I ache for them and am also scared to be one of them. I shouldn't watch anymore sad movies!!!!

As for Miss Faith, she is doing ok. They have gone down on her Versed, which I think is a good thing. When she is not as sedated, her blood pressure is much better...I think because she is more aware which gives her more will to be here!!! Blood pressure numbers become much more stable when she is awake. So, they are going to wean the Versed and have added Ativan as a PRN.

We had a scare with her illeostomy. The hospital ICU doctors were concerned the tissue was dying. GI specialists came to look at it and said it was fine and that it was just old, dried blood on top of the tissue and was nothing to worry about. What a load off my mind! I wanted to do a flip! If I could have, I would!

This will be a hard week for me, mentally, because I have to be home for 5 nights in a row. Since I have Karen (my 16 year old who is total care) I need to be here because my aunt is on vacation. Monty does not do care for her as a precaution since she is female. My only other caregiver for her is my aunt and since she is out of town...it is me. I haven't been away from Faith that long and it will be a huge challenge. I can go down and see her while the kids are at school, but need to be home in the evenings. It will be extremely difficult, but what can I do? It is what it is. Right? So, if I am a bit more crazy this week...you will know why.

7 comments:

  1. Hi Shelly,

    Just checking in on Faith, you and your family. Oh, you need to be watching a good chic flick with a lot of humor, not Marley and Me. Well, next time. I love the new pictures of the family - what a handsome group. You've got your own Brady Bunch! Keep it up, your strength is amazing!

    Gretchen Harshman

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  2. Marley and Me is a good movie, but one that had me bawling too! I agree with Gretchen - a good chick flick - How to Lose a Guy in 10 Days...Hitch...heck - Pride and Prejudice! Go for the uplifting!

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  3. Will be lifting you in prayer all this week Shelly - as well as Miss Faith.

    With love and prayer for His little one and yours,
    Jackie Lipuma

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  4. We have been watching Faith all weekend ,and praying. some time I think of you and your family and remember how it was when Peter and our family was struggling thur the ups and downs of this difficult situation!!!!! We have not seen Marley And ME,and will pass on it for now. Our fav is Everybody Loves Raymond, old,but funny. What to say ,Keep the Faith!!! Love each other!!!! Barbara and Nick. NH.

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  5. Thinking of you and praying for your family this week (and always)!

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  6. Hey Shelly & Monty,
    We have space for Karen. Just drop her by, and we would love to take care of her. You do remember that we are practically neighbors, and I do drive to Sacramento too many days a week, so call me if you need ANYTHING! I was at UCD this morning.
    Todd & Amy Hanaway

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  7. michelle madduxMonday, 18 May, 2009

    Keep the Faith Shelly! Glad to hear things are stable. I'll be thinking of you and sending you strength this week as you have to be away from Faith! I haven't mentioned it yet, but I love the family pictures you posted a while back...you have a beautiful family and so much to be thankful for.

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