Thursday, May 28, 2009

DAY 58

Faith is off her Dopamine and they are trying intermittent dialysis.

The scope was done of her stomach and it was not good news. Half of her stomach is necrotic (dead). Dr. Haight isn't sure what are options are and is going to review things and he will be part of our meeting tomorrow.

So, basically, almost her entire digestive tract is not working well or at all. She does get nutrition through TPN, but it is not a great long term solution, but it may be our only one. They still do not want to put in a J-tube because all of her intestinal tissues are too fragile. I don't know if that is something that can improve or not. Guess that is a question for the team tomorrow.

I feel better and am going to head to bed pretty soon to ensure I can make it tomorrow. It's not like I even WANT to be there, but I know I need to be. Time to face the music.

8 comments:

  1. Praying for you and your family, when I read you post today I thought of this quote,

    "You become a champion by fighting one more round. When things are tough, you fight one more round." James Corbett

    Hang in there mom, we're Keeping Faith!

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  2. michelle madduxThursday, 28 May, 2009

    Shelly - hang in there tomorrow! I know that the meeting will be tough, but know that all of the people who support your family on this blog will be right there with you in spirit! Wishing you positive thoughts and strength to endure and advocate!

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  3. Hugs to you and your family, Shelly!

    Lisa Froling

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  4. I'll be thinking about you and Faith today. I know how hard those meetings can be, but be strong. We're going to visit our Gracie Tree today, so we'll say a prayer for Faith as we place some new heart rocks at the tree.
    Much love, Amy

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  5. Hi Shelly,
    So sorry to hear the news on her stomach, the meeting will be good and informative for you and Monty. Maybe as you mentioned before, the time for healing may be at home, miracles still can happen. Love, Tina

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  6. Thinking of you today Shelly. Praying that the meeting goes well and you come out with some answers, a plan, and a peaceful heart.

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  7. Shelly & Monty
    My thoughts and prayers are with you and your family. Hope the meeting helps you both with some answers and peace.
    Love and prayers, Pattie Goodson

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  8. Unceasing in prayer - with the Spirit's groanings.

    Love,
    Jackie Lipuma

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