They tried to switch Faith over to the conventional vent, but were unsuccessful. They discussed the possibility of her needing a tracheostomy since she has been vent dependent for so long. Everyone was so hopeful she would have been weaned off the vent by now, but unfortunately that has not happened. It is discouraging because her heart and lungs were the organs that had been doing so well. If a tracheostomy is needed, they need to clear it with cardiology. I am not sure why, but something with her anatomy and making sure it is even a possibility. I just pray she turns the corner and gets off without intervention.
Other than that, things remain the same today. Still having ups and downs with our blood pressure and fluid retention. They are doing more bloodwork to see where we are at with liver function and insulin production. So, we'll see. Tomorrow is a new day.
Another hurdle! I join you in praying that Faith can get off the vent without intervention. I know you've been waiting a long time to hear her sweet voice. Shelly, I just want to let you know how inspirational you are. Even with the incredible highs and lows that you have endured the past 47 days, you still have hope, optimism and a spirit of love. Praying that God blesses your family with the peace that passes understanding.
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